Perspectives of Patients and Clinicians on Reproductive Health Care and ADPKD
This study represents the first qualitative study of patient and physician perspectives on reproductive lifecycle care for ADPKD. We present valuable insights into factors influencing patients' reproductive decision-making, a comprehensive comparison between the perspectives of patients and clinicians on family planning and follow-up care of minors at risk for ADPKD, and recommendations for enhancing overall care quality. Incorporating these insights into clinical care could enhance patient-centered care and foster interdisciplinary collaborations to further improve the quality of reproductive health care services for individuals with ADPKD.
Authors
- Margriet Gosselink (ORCID: https://orcid.org/0000-0001-7682-3685)
- Neeltje Crombag (ORCID: https://orcid.org/0000-0002-6808-0874)
- A. Titia Lely (ORCID: https://orcid.org/0000-0001-6356-7707)
- Mandy G. Keijzer‐Veen (ORCID: https://orcid.org/0000-0003-0727-7451)
- Albertien M. van Eerde (ORCID: https://orcid.org/0000-0001-5953-5956)
- Rozemarijn Snoek (ORCID: https://orcid.org/0000-0001-6892-3168)
- Paul De Vos (ORCID: https://orcid.org/0009-0006-0206-443X)
- Robin Mooren
Institutions
- University Medical Center Utrecht (NL)
- Apotheek Haagse Ziekenhuizen (NL)
- Haga Hospital (NL)
- Wilhelmina Children's Hospital (NL)
Publication Details
- Journal
- Kidney International Reports
- Published
- 2024-09-02
- DOI
- https://doi.org/10.1016/j.ekir.2024.08.028
- Citations
- 3
- Primary Topic
- Genetic and Kidney Cyst Diseases
- Type
- article
- Field-Weighted Citation Impact
- 1.65
Funders
- Universitair Medisch Centrum Utrecht
- European Rare Kidney Disease Reference Network