Opportunities and challenges of a dynamic consent-based application: personalized options for personal health data sharing and utilization
Dynamic consent is an ethically advantageous approach for the sharing and utilization of personal health data. Personalized options have the potential to serve as pragmatic safeguards for the autonomy of individuals in the sharing and utilization of personal health data. Incorporating the principles of dynamic consent into real-world scenarios requires remaining issues, such as the need for powerful authentication mechanisms that bolster privacy and security, to be addressed. This would enhance the trustworthiness of dynamic consent-based applications while preserving their ethical advantages.
Authors
- Il Kon Kim (ORCID: https://orcid.org/0000-0002-2260-5241)
- Ah Ra Lee (ORCID: https://orcid.org/0000-0003-1890-2443)
- Dongjun Koo (ORCID: https://orcid.org/0000-0001-7575-2264)
- Eun-Joo Lee (ORCID: https://orcid.org/0000-0002-4294-9471)
- Ho-Young Lee
- Sooyoung Yoo
Institutions
- Seoul National University (KR)
- Seoul National University Bundang Hospital (KR)
- Kyungpook National University (KR)
Publication Details
- Journal
- BMC Medical Ethics
- Published
- 2024-08-31
- DOI
- https://doi.org/10.1186/s12910-024-01091-3
- Citations
- 14
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 7.60