Co‐Designing a Palliative Dementia Care Framework to Support Holistic Assessment and Decision Making: The EMBED‐Care Framework
We were guided by our Patient and Public Involvement (PPI) group consisting of three people with mild dementia, including younger onset dementia, and seven family carers throughout the project. They supported the overall development of the Framework, including planning of workshops, interpreting findings and testing the framework in our PPI meetings.
Authors
- Juliet Gillam (ORCID: https://orcid.org/0000-0002-9752-1704)
- Clare Ellis‐Smith (ORCID: https://orcid.org/0000-0003-3453-3203)
- Elizabeth L Sampson (ORCID: https://orcid.org/0000-0001-8929-7362)
- Jesutofunmi Aworinde (ORCID: https://orcid.org/0000-0002-2597-6670)
- Bethan E. Phillips (ORCID: https://orcid.org/0000-0002-1430-1870)
- Nathan Davies (ORCID: https://orcid.org/0000-0001-7757-5353)
- Catherine Evans (ORCID: https://orcid.org/0000-0003-0034-7402)
- Janet Anderson (ORCID: https://orcid.org/0000-0002-1452-8370)
- Charlotte Kenten (ORCID: https://orcid.org/0000-0001-7012-7347)
- Catherine Harvey (ORCID: https://orcid.org/0000-0002-9573-8897)
- Kirsten Moore (ORCID: https://orcid.org/0000-0002-8631-3213)
- Jane Ward
Institutions
- The Royal Melbourne Hospital (AU)
- The University of Melbourne (AU)
- Queen Mary University of London (GB)
- King's College London (GB)
- The Royal Free Hospital (GB)
- East London NHS Foundation Trust (GB)
- Royal London Hospital (GB)
- National Ageing Research Institute (AU)
- Cicely Saunders International (GB)
- University College London (GB)
- Marie Curie (GB)
- Monash University (AU)
Publication Details
- Journal
- Health Expectations
- Published
- 2024-08-31
- DOI
- https://doi.org/10.1111/hex.70011
- Citations
- 4
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 2.17
Funders
- UK Research and Innovation
- National Institute for Health and Care Research
- Department of Health and Social Care
- Economic and Social Research Council