Navigating a “Good Death” During COVID-19: Understanding Real-Time End-of-Life Care Structures, Processes, and Outcomes Through Clinical Notes
Care processes were negotiated throughout the end of life, with clinicians and families making in-the-moment decisions. Some adaptations were effective but also placed extraordinary pressure on paid and family caregivers. Healthcare teams' and families' goals to meet patients' end-of-life priorities can be supported by ongoing assessment of patient goals and process changes needed to support them, stronger structural supports for paid and family caregivers, incentivizing relationships across primary care and hospice teams, and extending social work and spiritual care.
Authors
- Laura Moreines (ORCID: https://orcid.org/0009-0003-5827-5429)
- Emily C Franzosa (ORCID: https://orcid.org/0000-0002-7590-0316)
- Abraham A. Brody (ORCID: https://orcid.org/0000-0002-3405-7043)
- Dena Schulman‐Green (ORCID: https://orcid.org/0000-0003-2259-3284)
- Patricia Kim (ORCID: https://orcid.org/0000-0002-5722-7404)
- Melissa D. Aldridge (ORCID: https://orcid.org/0000-0002-3334-4542)
- Margaret V. McDonald (ORCID: https://orcid.org/0000-0003-1045-0956)
- Jonelle Boafo (ORCID: https://orcid.org/0000-0002-0363-8750)
- Daniel David (ORCID: https://orcid.org/0000-0002-9081-423X)
Institutions
- Veterans Health Administration (US)
- Geriatric Research Education and Clinical Center (US)
- James J. Peters VA Medical Center (US)
- New York University (US)
- Icahn School of Medicine at Mount Sinai (US)
Publication Details
- Journal
- The Gerontologist
- Published
- 2024-08-26
- DOI
- https://doi.org/10.1093/geront/gnae099
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Institutes of Health
- National Institute of Nursing Research