Public attitudes towards personal health data sharing in long-term epidemiological research: a Citizen Science approach in the KORA study
The findings shed light on cohort management and long-term engagement with study participants. A long-term health study needs to benefit public and individual health; the institution needs to be trustworthy; and the results and their impact need to be disseminated in widely understandable terms and by the right means of communication back to the participants.
Authors
- Margit Heier (ORCID: https://orcid.org/0000-0002-7317-7566)
- Ina‐Maria Rückert‐Eheberg (ORCID: https://orcid.org/0000-0001-5418-283X)
- Monika Kraus (ORCID: https://orcid.org/0000-0003-4825-8724)
- Birgit Linkohr (ORCID: https://orcid.org/0000-0002-3387-5685)
- Annette Peters
- Markus Simon
Institutions
- Zimmer Biomet (Netherlands) (NL)
- University Hospital Augsburg (DE)
- Helmholtz Zentrum München (DE)
- German Centre for Cardiovascular Research (DE)
- Deutsches Herzzentrum München (DE)
- Deutsches Diabetes-Zentrum e.V. (DE)
- German Center for Diabetes Research (DE)
- Heinrich Heine University Düsseldorf (DE)
- Ludwig-Maximilians-Universität München (DE)
Publication Details
- Journal
- BMC Public Health
- Published
- 2024-08-26
- DOI
- https://doi.org/10.1186/s12889-024-19730-0
- Citations
- 2
- Primary Topic
- Health, Environment, Cognitive Aging
- Type
- article
- Field-Weighted Citation Impact
- 0.63
Funders
- Bundesministerium für Bildung und Forschung
- Helmholtz Zentrum München