Health information literacy among children with spinal muscular atrophy and their caregivers
Patients with SMA and their caregivers had low levels of health information literacy. SMA information visibility and standardization need to be improved. Medical personnel with experience in the diagnosis and treatment of SMA and media should aim to share knowledge and increase the quality of life of those with SMA.
Authors
- Shanshan Mao (ORCID: https://orcid.org/0000-0001-6736-1407)
- Feng Gao (ORCID: https://orcid.org/0000-0003-0397-7493)
- Wei Lin (ORCID: https://orcid.org/0000-0002-7092-7157)
- Weiran Zhang
- Yue Yan (ORCID: https://orcid.org/0000-0003-1387-4973)
- Mei Yao
- Yijie Feng
Institutions
- Zhejiang International Studies University (CN)
- Children's Hospital of Zhejiang University (CN)
- Zhejiang University (CN)
Publication Details
- Journal
- The Italian Journal of Pediatrics/Italian journal of pediatrics
- Published
- 2024-08-25
- DOI
- https://doi.org/10.1186/s13052-024-01723-9
- Citations
- 3
- Primary Topic
- Neurogenetic and Muscular Disorders Research
- Type
- article
- Field-Weighted Citation Impact
- 1.31
Funders
- Innovative Research Group Project of the National Natural Science Foundation of China
- National Natural Science Foundation of China
- Fundamental Research Funds for the Central Universities