Living with glioblastoma — the need for integrated support based on experiences of chaos, loss of autonomy, and isolation in both patients and their relatives
The changes in life situations faced by patients with glioblastoma and their closest relatives are dramatic and underline the importance of providing integrated care throughout the entire healthcare continuum, encompassing specialist neuro-oncological care, municipal support, and palliative care. Individualized support for both patients and relatives can enhance the sense of safety amid the chaos in their life situation.
Authors
- Anja Smits (ORCID: https://orcid.org/0000-0003-4171-2672)
- Pernilla Ståhl (ORCID: https://orcid.org/0000-0002-8293-9905)
- Ingela Henoch (ORCID: https://orcid.org/0000-0002-1987-5419)
- Anneli Ozanne (ORCID: https://orcid.org/0000-0003-1737-3359)
- Bertil Rydenhag (ORCID: https://orcid.org/0000-0001-8472-5313)
Institutions
- Sahlgrenska University Hospital (SE)
- University of Gothenburg (SE)
Publication Details
- Journal
- Supportive Care in Cancer
- Published
- 2024-08-21
- DOI
- https://doi.org/10.1007/s00520-024-08801-y
- Citations
- 6
- Primary Topic
- Glioma Diagnosis and Treatment
- Type
- article
- Field-Weighted Citation Impact
- 2.63
Funders
- Göteborgs Universitet
- Sahlgrenska Akademin