A minimum data set—Core outcome set, core data elements, and core measurement set—For degenerative cervical myelopathy research (AO Spine RECODE DCM): A consensus study
The AO Spine RECODE-DCM has produced a minimum data set for use in DCM clinical trials today. These are available at https://myelopathy.org/minimum-dataset/. While it is anticipated the CDE and COS have strong and durable relevance, it is acknowledged that new measurement tools, alongside an increasing transition to study patients not undergoing surgery, may necessitate updates and adaptation, particularly with respect to the CMS.
Authors
- Danyal Z. Khan (ORCID: https://orcid.org/0000-0001-9213-2550)
- Vafa Rahimi‐Movaghar (ORCID: https://orcid.org/0000-0001-7347-8767)
- Mark Kotter (ORCID: https://orcid.org/0000-0001-5145-7199)
- Benjamin M. Davies (ORCID: https://orcid.org/0000-0003-0591-5069)
- James Milligan (ORCID: https://orcid.org/0000-0003-3387-1614)
- Alvaro Yanez Touzet (ORCID: https://orcid.org/0000-0001-9309-1885)
- Angus McNair (ORCID: https://orcid.org/0000-0002-2601-9258)
- Xiaoyu Yang (ORCID: https://orcid.org/0000-0002-9055-1230)
- David Anderson (ORCID: https://orcid.org/0000-0001-7104-122X)
- James D. Guest (ORCID: https://orcid.org/0000-0003-0931-0286)
- Lindsay Tetreault (ORCID: https://orcid.org/0000-0001-8435-4292)
- Ellen Sarewitz (ORCID: https://orcid.org/0000-0002-6062-999X)
- Aria Nouri (ORCID: https://orcid.org/0000-0002-4965-3059)
- Ricardo Rodrigues‐Pinto (ORCID: https://orcid.org/0000-0002-6903-348X)
- Shirley Widdop
- Bizhan Aarabi (ORCID: https://orcid.org/0000-0001-8071-457X)
- Caroline Treanor (ORCID: https://orcid.org/0000-0002-6182-6338)
- James S. Harrop (ORCID: https://orcid.org/0000-0002-0943-3406)
- Oliver Mowforth (ORCID: https://orcid.org/0000-0001-6788-745X)
- Sukhivinder Kalsi-Rayn
- Ailish Malone (ORCID: https://orcid.org/0000-0002-7997-4099)
- Michael George Fehlings (ORCID: https://orcid.org/0000-0002-5722-6364)
- Shekar N. Kurpad (ORCID: https://orcid.org/0000-0003-1548-5453)
- Carl Moritz Zipser (ORCID: https://orcid.org/0000-0002-4396-4796)
- Jefferson R. Wilson (ORCID: https://orcid.org/0000-0001-5965-0305)
- Timothy F. Boerger (ORCID: https://orcid.org/0000-0003-1587-3704)
- Armin Curt
- Allan R. Martin (ORCID: https://orcid.org/0000-0002-9495-5654)
- Olesja Hazenbiller
- Julio Cesar Furlan (ORCID: https://orcid.org/0000-0002-2038-0018)
- Tammy Blizzard (ORCID: https://orcid.org/0000-0002-0335-9612)
- Iwan Sadler (ORCID: https://orcid.org/0000-0002-8696-1122)
- Nader Fallah
- Zachary Zimmerman (ORCID: https://orcid.org/0000-0003-2313-5592)
- Carla Salzman
- Robert Chen (ORCID: https://orcid.org/0000-0002-8371-8629)
- Brian Kwon (ORCID: https://orcid.org/0000-0002-5337-0924)
- Anne M. Wandycz
- Margaret Reeves
- Rye Raine
- Ali Gharooni
- Sukvinder K. Ryan
Institutions
- University of Geneva (CH)
- University of Maryland, Baltimore (US)
- The University of Sydney (AU)
- Praxis Spinal Cord Institute (CA)
- University Health Network (CA)
- University of British Columbia (CA)
- Royal College of Surgeons in Ireland (IE)
- University of Miami (US)
- Thomas Jefferson University (US)
- Universidade do Porto (PT)
- University of Toronto (CA)
- Medical College of Wisconsin (US)
- University of Cambridge (GB)
- AO Foundation (CH)
- Toronto Rehabilitation Institute (CA)
- University of Manchester (GB)
- University of Bristol (GB)
- NYU Langone Health (US)
- University Hospital of Geneva (CH)
- Sina Hospital (IR)
- Myeloma UK (GB)
- Wellcome / EPSRC Centre for Interventional and Surgical Sciences (GB)
- Universitätsklinik Balgrist (CH)
- Hospital de Santo António (PT)
- International Collaboration On Repair Discoveries (CA)
- National Hospital for Neurology and Neurosurgery (GB)
- Neurological Surgery (US)
- University College London (GB)
- Tehran University of Medical Sciences (IR)
- University of California, Davis (US)
- McMaster University (CA)
Publication Details
- Journal
- PLoS Medicine
- Published
- 2024-08-22
- DOI
- https://doi.org/10.1371/journal.pmed.1004447
- Citations
- 12
- Primary Topic
- Delphi Technique in Research
- Type
- article
- Field-Weighted Citation Impact
- 13.58
Funders
- National Institute for Health and Care Research
- Department of Health and Social Care
- University of Cambridge
- AO Foundation
- AOSpine
- Cambridge University Hospitals