Patient and carer perceptions of video, telephone and in-person clinics for Phenylketonuria (PKU)
Online video and telephone clinic platforms were effective in overcoming the challenging circumstances in management, monitoring and treatment of patients with PKU during the COVID-19 pandemic. However, in-person clinics remain the preferred respondent option. It is important that HCPs are flexible, enabling people with PKU a choice of clinic options according to their individual clinical need and circumstances.
Authors
- Fatma Ilgaz (ORCID: https://orcid.org/0000-0002-6518-0255)
- Anne Daly (ORCID: https://orcid.org/0000-0003-2579-8699)
- Alex Pinto (ORCID: https://orcid.org/0000-0002-8206-0829)
- Anita MacDonald (ORCID: https://orcid.org/0000-0002-2896-3509)
- Suzanne Ford (ORCID: https://orcid.org/0000-0003-1041-2116)
- Catherine Ashmore
- Sharon Evans (ORCID: https://orcid.org/0000-0002-7654-3621)
- Sharon Buckley (ORCID: https://orcid.org/0000-0001-7148-248X)
- Hannah McBride
Institutions
- Manchester Metropolitan University (GB)
- Birmingham City University (GB)
- North Bristol NHS Trust (GB)
- Birmingham Women’s and Children’s NHS Foundation Trust (GB)
- Hacettepe University (TR)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2024-08-20
- DOI
- https://doi.org/10.1186/s13023-024-03295-7
- Citations
- 2
- Primary Topic
- Metabolism and Genetic Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.76