Breaching Confidentiality in Genetic and Non-Genetic Cases: Two Problematic Distinctions
Ethical questions about confidentiality arise when patients refuse to inform relatives who are at risk of a genetic condition. Specifically, healthcare providers may struggle with the permissibility of breaching confidentiality to warn patients' at-risk relatives. In exploring this issue, several authors have converged around the idea that genetic cases differ from non-genetic cases (e.g., involving a threat of violence or the spread of an infectious disease) along two related dimensions: (1) In genetic cases, the risk of harm is already present in an at-risk third party, whereas in non-genetic cases, it is not; and (2) In genetic cases, the patient does not create a risk of harm to a third party, whereas in non-genetic cases, the patient does. I argue that these distinctions do not exclusively differentiate genetic from non-genetic cases and should not bear on the permissibility of breaching confidentiality. Instead, such determinations should be based on other considerations.
Authors
- Madison K. Kilbride (ORCID: https://orcid.org/0000-0002-8923-9944)
Institutions
- University of Utah (US)
Publication Details
- Journal
- The American Journal of Bioethics
- Published
- 2024-08-20
- DOI
- https://doi.org/10.1080/15265161.2024.2388719
- Citations
- 14
- Primary Topic
- Ethics and Legal Issues in Pediatric Healthcare
- Type
- article
- Field-Weighted Citation Impact
- 15.53