Breaching Confidentiality in Genetic and Non-Genetic Cases: Two Problematic Distinctions

Ethical questions about confidentiality arise when patients refuse to inform relatives who are at risk of a genetic condition. Specifically, healthcare providers may struggle with the permissibility of breaching confidentiality to warn patients' at-risk relatives. In exploring this issue, several authors have converged around the idea that genetic cases differ from non-genetic cases (e.g., involving a threat of violence or the spread of an infectious disease) along two related dimensions: (1) In genetic cases, the risk of harm is already present in an at-risk third party, whereas in non-genetic cases, it is not; and (2) In genetic cases, the patient does not create a risk of harm to a third party, whereas in non-genetic cases, the patient does. I argue that these distinctions do not exclusively differentiate genetic from non-genetic cases and should not bear on the permissibility of breaching confidentiality. Instead, such determinations should be based on other considerations.

Authors

Institutions

Publication Details

Journal
The American Journal of Bioethics
Published
2024-08-20
DOI
https://doi.org/10.1080/15265161.2024.2388719
Citations
14
Primary Topic
Ethics and Legal Issues in Pediatric Healthcare
Type
article
Field-Weighted Citation Impact
15.53
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

Breaching Confidentiality in Genetic and Non-Genetic Cases: Two Problematic Distinctions

Madison K. Kilbride
14 citations
The American Journal of Bioethics
Ethics and Legal Issues in Pediatric Healthcare
15.53
article

Breaching Confidentiality in Genetic and Non-Genetic Cases: Two Problematic Distinctions

Madison K. Kilbride
article en
14 citations

Abstract

Ethical questions about confidentiality arise when patients refuse to inform relatives who are at risk of a genetic condition. Specifically, healthcare providers may struggle with the permissibility of breaching confidentiality to warn patients' at-risk relatives. In exploring this issue, several authors have converged around the idea that genetic cases differ from non-genetic cases (e.g., involving a threat of violence or the spread of an infectious disease) along two related dimensions: (1) In genetic cases, the risk of harm is already present in an at-risk third party, whereas in non-genetic cases, it is not; and (2) In genetic cases, the patient does not create a risk of harm to a third party, whereas in non-genetic cases, the patient does. I argue that these distinctions do not exclusively differentiate genetic from non-genetic cases and should not bear on the permissibility of breaching confidentiality. Instead, such determinations should be based on other considerations.

The American Journal of BioethicsVol. 25(10)
University of Utah (US)
Peace, Justice and strong institutions
Openalex Percentile: Top 1%
Ethics and Legal Issues in Pediatric Healthcare
15.53
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.

Breaching Confidentiality in Genetic and Non-Genetic Cases: Two Problematic Distinctions — Madison K. Kilbride · The American Journal of Bioethics (2024) | TGRS Research Map | TGRS