The quality-of-life impact of Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) on patients’ lives: an interpretative descriptive qualitative study

Findings highlighted that SJS/TEN had a significant impact on the different QoL experiences of participants including psychological, physical, social, educational and occupational. Many expressed challenges they faced following discharge from hospital, including gaps in psychological care, navigating disjointed care pathways and lack of coordinated care. If SJS/TEN is viewed as a chronic condition, it is important that researchers and clinicians study the long-term effects of SJS/TEN on people's lives to aid in developing a plan of care to enhance the QoL for this cohort. Psychological and QoL assessments following discharge from hospital require consideration.

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Publication Details

Journal
British Journal of Dermatology
Published
2024-08-20
DOI
https://doi.org/10.1093/bjd/ljae334
Citations
10
Primary Topic
Drug-Induced Adverse Reactions
Type
article
Field-Weighted Citation Impact
4.48

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article

The quality-of-life impact of Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) on patients’ lives: an interpretative descriptive qualitative study

Rajamanikandan Savarimalai, Pierre-André Natella, Clareann H. Bunker, Pauline Meskell et al.
10 citations
British Journal of Dermatology
Drug-Induced Adverse Reactions
4.48
article

The quality-of-life impact of Stevens–Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN) on patients’ lives: an interpretative descriptive qualitative study

Rajamanikandan Savarimalai, Pierre-André Natella, Clareann H. Bunker, Pauline Meskell, S. Oro, Sarah Walsh, Jacqueline Simpson, Pauline O’Reilly, Dónal G. Fortune, Louise Barry, Alice Coffey, A. Colin, Roni P. Dodiuk‐Gad, Sheila Ryan
article en
10 citations

Abstract

Findings highlighted that SJS/TEN had a significant impact on the different QoL experiences of participants including psychological, physical, social, educational and occupational. Many expressed challenges they faced following discharge from hospital, including gaps in psychological care, navigating disjointed care pathways and lack of coordinated care. If SJS/TEN is viewed as a chronic condition, it is important that researchers and clinicians study the long-term effects of SJS/TEN on people's lives to aid in developing a plan of care to enhance the QoL for this cohort. Psychological and QoL assessments following discharge from hospital require consideration.

British Journal of DermatologyVol. 192(1)
University College London Hospitals NHS Foundation Trust (GB), King's College - North Carolina (US), Université Paris-Est Créteil (FR), University of Limerick (IE), Emek Medical Center (IL), Chelsea and Westminster Hospital NHS Foundation Trust (GB), University Hospital Limerick (IE), King's College Hospital (GB), University College London (GB)
Health Research Board
Openalex Percentile: Top 5%
Drug-Induced Adverse Reactions
4.48
DOIOpen Access PDFOpenAlex
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