End-of-life care in multiple system atrophy: UK survey of patients and families
People with MSA and their carers continue to face many complex physical and emotional issues that would benefit from palliative care. Discussions about care at the end of life were generally perceived as helpful, but although the deterioration was often discussed, many families seemed unprepared for the death. Palliative care services were involved but this appeared limited.
Authors
- Niall Quinn (ORCID: https://orcid.org/0000-0003-3145-0269)
- David Oliver (ORCID: https://orcid.org/0000-0001-9302-3225)
- Emma Rushton
- Jalesh N. Panicker (ORCID: https://orcid.org/0000-0001-5190-3259)
- Christopher Kobylecki (ORCID: https://orcid.org/0000-0002-7797-0756)
- Anette E. Schrag (ORCID: https://orcid.org/0000-0002-9872-6680)
- Kailash P. Bhatia (ORCID: https://orcid.org/0000-0001-8108-1196)
- Karen Walker (ORCID: https://orcid.org/0000-0002-4149-2270)
- Andy Barrick
Institutions
- University of Kent (GB)
- Manchester Academic Health Science Centre (GB)
- University of Manchester (GB)
- Multiple System Atrophy Trust (GB)
- National Hospital for Neurology and Neurosurgery (GB)
- University College London (GB)
Publication Details
- Journal
- BMJ Supportive & Palliative Care
- Published
- 2024-08-13
- DOI
- https://doi.org/10.1136/spcare-2024-005045
- Citations
- 4
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 2.17
Funders
- Multiple System Atrophy Trust