Tackling challenges in rare diseases: The ISGACA approach on non-pancreatic cancers in the periampullary region
By sharing knowledge, expertise, and clinical data, the ISGACA approach has not only gathered sufficient evidence to secure grants and ethical approvals for prospective studies, but also demonstrates options for standardizing patient care and improving outcomes for patients with rare cancers. The ISGACA approach offers a detailed methodology for initiating research on rare cancers and could serve as a replicable model for future research initiatives.
Authors
- Aldo Scarpa
- Michele Ghidini (ORCID: https://orcid.org/0000-0001-5435-1218)
- Dorine S. Klei (ORCID: https://orcid.org/0000-0003-0083-6425)
- Daniël H. Lemmers (ORCID: https://orcid.org/0000-0002-3534-1089)
- Bas A. Uijterwijk (ORCID: https://orcid.org/0000-0003-2479-2092)
- Marc G. Besselink (ORCID: https://orcid.org/0000-0003-2650-9350)
- Michèle Milella (ORCID: https://orcid.org/0000-0002-3826-5237)
- Alberto Manzoni (ORCID: https://orcid.org/0000-0002-1315-5373)
- Alma Moekotte (ORCID: https://orcid.org/0000-0002-2883-4483)
- Claudio Luchini (ORCID: https://orcid.org/0000-0003-4901-4908)
- Ester Oneda (ORCID: https://orcid.org/0000-0002-7861-7882)
- Elisa Bannone (ORCID: https://orcid.org/0000-0001-5393-6783)
- Hanneke Wilmink
- N. S. V. L. Baboeram (ORCID: https://orcid.org/0009-0002-4905-1354)
- Mohammed Abu Hilal
- Alberto Zaniboni
Institutions
- University of Verona (IT)
- Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico (IT)
- Amsterdam Neuroscience (NL)
- Fondazione Poliambulanza Istituto Ospedaliero (IT)
- Amsterdam University Medical Centers (NL)
- Amsterdam University of Applied Sciences (NL)
- University of Amsterdam (NL)
Publication Details
- Journal
- European Journal of Surgical Oncology
- Published
- 2024-08-13
- DOI
- https://doi.org/10.1016/j.ejso.2024.108601
- Primary Topic
- Pancreatic and Hepatic Oncology Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00