The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia

Although co-occurring cognitive impairment and physical disability in older adults is common, there is little understanding of how this group perceives their ability to do their daily activities. This study used photovoice to explore how older adults with MCI/early dementia and physical disability without and with care partners (dyads) perceive challenges with their daily activities. Photovoice is a visual research methodology to capture participants' insight on aspects of their daily lives. No known studies have taken this approach to explore the experiences of older adults with MCI/early dementia and co-occurring physical disability. We used a cross-sectional, exploratory research design to understand participants' (<i>n</i> = 12) experiences in their home environment. Photos and participant thoughts on the photos were categorized based on the Blackfoot Breath of Life Theory and the Hierarchy Model of Needs in Dementia, an adaptation of Maslow's Model. Notable findings included: awareness of physical/cognitive difficulties by older adults, solutions for ADL difficulty in persons with MCI/early dementia, care partners' difficulty recognizing pain without the presence of severe emotional or physical responses, reducing mood severity, and self-esteem needs met with structured, memory-issue adapted, meaningful activities. Older adults with co-occurring physical disability and MCI/early dementia identified both physiological and psychological needs despite challenges impacting their cognition. Photovoice evoked daily situations of these individuals and revealed the importance of developing individualized intervention elements for older adults with dementia and physical disability.

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Publication Details

Journal
Dementia
Published
2024-08-12
DOI
https://doi.org/10.1177/14713012241272754
Citations
3
Primary Topic
Participatory Visual Research Methods
Type
article
Field-Weighted Citation Impact
3.40

Funders

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article

The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia

Emerald Jenkins, Samantha Curriero, Jenni Seale Reiff, Ja’Lynn Gray et al.
3 citations
Dementia
Participatory Visual Research Methods
3.40
article

The use of photovoice to explore the physical disability experience in older adults with mild cognitive impairment/early dementia

Emerald Jenkins, Samantha Curriero, Jenni Seale Reiff, Ja’Lynn Gray, Valerie T. Cotter, Quinn Seau, Erika Hornstein, Rhonda Smith Wright, Sarah Szanton, Janiece Taylor, Qiwei Li, Grace Huynh
article en
3 citations

Abstract

Although co-occurring cognitive impairment and physical disability in older adults is common, there is little understanding of how this group perceives their ability to do their daily activities. This study used photovoice to explore how older adults with MCI/early dementia and physical disability without and with care partners (dyads) perceive challenges with their daily activities. Photovoice is a visual research methodology to capture participants' insight on aspects of their daily lives. No known studies have taken this approach to explore the experiences of older adults with MCI/early dementia and co-occurring physical disability. We used a cross-sectional, exploratory research design to understand participants' (<i>n</i> = 12) experiences in their home environment. Photos and participant thoughts on the photos were categorized based on the Blackfoot Breath of Life Theory and the Hierarchy Model of Needs in Dementia, an adaptation of Maslow's Model. Notable findings included: awareness of physical/cognitive difficulties by older adults, solutions for ADL difficulty in persons with MCI/early dementia, care partners' difficulty recognizing pain without the presence of severe emotional or physical responses, reducing mood severity, and self-esteem needs met with structured, memory-issue adapted, meaningful activities. Older adults with co-occurring physical disability and MCI/early dementia identified both physiological and psychological needs despite challenges impacting their cognition. Photovoice evoked daily situations of these individuals and revealed the importance of developing individualized intervention elements for older adults with dementia and physical disability.

DementiaVol. 24(1)
Johns Hopkins University (US)
Rita and Alex Hillman Foundation, National Institute on Aging, National Institute on Disability, Independent Living, and Rehabilitation Research
Quality Education
Openalex Percentile: Top 7%
Participatory Visual Research Methods
3.40
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