The observational EURACAN prospective clinical registry dedicated to epithelioid hemangioendothelioma: The protocol of an international and collaborative effort on an ultra-rare entity
The registry has been joined by 21 sarcoma reference centers across EU and UK, covering 10 countries. Patients' recruitment started in December 2023. The estimated completion date is December 2033 upon agreement on the achievement of all the registry objectives. The already established collaboration and participation of EHE patient's associations involved in the project will help in promoting the registry and fostering accrual.
Authors
- Andrea Napolitano (ORCID: https://orcid.org/0000-0002-7509-1555)
- Alessandro Mazzocca
- Maria Nilsson (ORCID: https://orcid.org/0000-0003-3036-8546)
- Andri Papakonstantinou (ORCID: https://orcid.org/0000-0002-4232-4658)
- Claudia Valverde (ORCID: https://orcid.org/0000-0003-4107-8616)
- Nadia Hindi (ORCID: https://orcid.org/0000-0002-5864-762X)
- Carlo María Cicala (ORCID: https://orcid.org/0000-0002-4350-495X)
- Anna Mariuk-Jarema (ORCID: https://orcid.org/0000-0002-4237-1139)
- Domenico Andrea Campanacci (ORCID: https://orcid.org/0000-0002-3912-3943)
- Elisabetta Neri (ORCID: https://orcid.org/0000-0003-3039-3792)
- Javier Martín‐Broto (ORCID: https://orcid.org/0000-0001-7350-6916)
- Angelo Paolo Dei Tos (ORCID: https://orcid.org/0000-0002-1228-8940)
- Paolo Baili (ORCID: https://orcid.org/0000-0003-0335-2418)
- Federico Scolari (ORCID: https://orcid.org/0000-0001-5490-672X)
- Paolo G. Casali (ORCID: https://orcid.org/0000-0003-4056-8023)
- S. Lindskog (ORCID: https://orcid.org/0000-0001-8055-5003)
- Sebastian Bauer (ORCID: https://orcid.org/0000-0001-5949-8120)
- Virginia Ferraresi (ORCID: https://orcid.org/0000-0001-6419-1668)
- Alexia Bertuzzi (ORCID: https://orcid.org/0000-0002-8933-9929)
- Joanna Szkandera (ORCID: https://orcid.org/0000-0002-2217-893X)
- Jean‐Yves Blay (ORCID: https://orcid.org/0000-0001-7190-120X)
- Giuseppe Bianchi (ORCID: https://orcid.org/0000-0001-6390-9762)
- Annalisa Trama (ORCID: https://orcid.org/0000-0001-8220-9833)
- Armelle Dufresne (ORCID: https://orcid.org/0000-0002-6637-3526)
- Robin L. Jones (ORCID: https://orcid.org/0000-0003-4173-3844)
- Federica Zuccheri (ORCID: https://orcid.org/0000-0002-9707-8060)
- Lorenzo D’Ambrosio (ORCID: https://orcid.org/0000-0003-3294-8819)
- Anna Maria Frezza (ORCID: https://orcid.org/0000-0003-2335-7224)
- Ninna Aggerholm‐Pedersen (ORCID: https://orcid.org/0000-0002-6859-5296)
- Giuseppe Badalamenti (ORCID: https://orcid.org/0000-0002-2478-8838)
- Silvia Stacchiotti (ORCID: https://orcid.org/0000-0002-1742-8666)
- Matilde Ingrosso (ORCID: https://orcid.org/0009-0002-7053-4684)
- Teresa Grassani
- Claudia Giani (ORCID: https://orcid.org/0000-0001-8630-4037)
- Giacomo Giulio Baldi (ORCID: https://orcid.org/0000-0003-0798-7752)
- Alessandro Gronchi (ORCID: https://orcid.org/0000-0002-4703-3534)
- Marta Sbaraglia (ORCID: https://orcid.org/0000-0002-7116-6513)
- S. Bazzurri
- Bruno Vincenzi (ORCID: https://orcid.org/0000-0001-8222-9025)
- Carlo Morosi (ORCID: https://orcid.org/0000-0003-4940-2185)
- Julia Ketzer
- Antonella Brunello (ORCID: https://orcid.org/0000-0003-2583-5226)
- Stefano Gabellini (ORCID: https://orcid.org/0000-0003-3886-9062)
- Sandro Pasquali (ORCID: https://orcid.org/0000-0003-4815-6293)
- Paolo Lasalvia (ORCID: https://orcid.org/0000-0002-4264-220X)
- Hugh Leonard (ORCID: https://orcid.org/0000-0003-4038-4988)
- Vincenzo Giannusa
- Francesca Nardozza
- Elisa Crotti
- Irene Benzonelli
- Nils Dieckmann
- Salvatore Vizzaccaro
- Melissa Gil Sanjines
- S. Bonfarnuzzo
- Kyetil Boye
- Laura Monteleone
- Christophe Bouvier
- A M Ivanescu
- Iwona Ługowska
- Stephanie Elston
Institutions
- Oslo University Hospital (NO)
- Royal Marsden NHS Foundation Trust (GB)
- Karolinska University Hospital (SE)
- Università Campus Bio-Medico (IT)
- Medical University of Graz (AT)
- Aarhus University Hospital (DK)
- Karolinska Institutet (SE)
- Centre Léon Bérard (FR)
- Istituto Oncologico Veneto (IT)
- Azienda Ospedaliero-Universitaria Careggi (IT)
- Essen University Hospital (DE)
- Istituto Ortopedico Rizzoli (IT)
- Vall d'Hebron Hospital Universitari (ES)
- Hospital Universitario Fundación Jiménez Díaz (ES)
- Azienda Ospedale - Università Padova (IT)
- The Maria Sklodowska-Curie National Research Institute of Oncology (PL)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
- Ospedale San Luigi Gonzaga (IT)
- Fondazione IRCCS Istituto Nazionale dei Tumori (IT)
- IRCCS Humanitas Research Hospital (IT)
- Hospital of Prato (IT)
- University of Gothenburg (SE)
- University of Palermo (IT)
Publication Details
- Journal
- PLoS ONE
- Published
- 2024-08-12
- DOI
- https://doi.org/10.1371/journal.pone.0308387
- Citations
- 3
- Primary Topic
- Vascular Tumors and Angiosarcomas
- Type
- article
- Field-Weighted Citation Impact
- 0.85
Funders
- KWF Kankerbestrijding