‘It is up to me because I gave him this life’ How the awareness of being permanently and unconditionally responsible shapes the experience of chronic sorrow in parents of disabled children
By revealing the importance of considering the unique parental position, the study enriches the concept of chronic sorrow, simultaneously offering insights into what it means to be a parent of a disabled child. These insights can improve care professionals' responsiveness to parental needs.
Authors
- Katie Lee Weille (ORCID: https://orcid.org/0009-0002-0736-7705)
- Christine Dedding (ORCID: https://orcid.org/0000-0003-3296-4245)
- Edith Raap (ORCID: https://orcid.org/0000-0002-3660-0564)
Institutions
- University of Applied Sciences Utrecht (NL)
- Wetenschappelijk Onderzoek- en Documentatiecentrum (NL)
- Amsterdam University Medical Centers (NL)
Publication Details
- Journal
- Psychology and Health
- Published
- 2024-08-11
- DOI
- https://doi.org/10.1080/08870446.2024.2378736
- Citations
- 6
- Primary Topic
- Family and Disability Support Research
- Type
- article
- Field-Weighted Citation Impact
- 3.83