Trajectories of adolescents living with vertical transmission-HIV virus

Abstract This study analyzes the life stories of eight young people living with vertically transmitted HIV in order to understand their perceptions marked by secrecy and silence regarding their experiences with the virus. Conducted at a specialized outpatient clinic in Rio de Janeiro, the study adopted circle dance, a Complementary and Integrative Health Practice, as a care tool. Using a qualitative approach and Life History as a data collection method, the focus was to understand the youth’s experiences related to the disease and the crucial aspects of their lives. Three girls and five boys participated in the study, all aware of their diagnosis. The principal emerging themes included family dynamics, school environment connection, challenges in treatment adherence, age at the time of diagnosis disclosure, and time elapsed since then. Analyzing these young people’s narratives allowed us to explore individual and social aspects of their experiences, revealing their similarities and differences. The circle dance workshops provided a playful space for expressing emotions and feelings through body movements, expanding young people’s perspectives on the future.

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Publication Details

Journal
Ciência & Saúde Coletiva
Published
2024-08-01
DOI
https://doi.org/10.1590/1413-81232024298.05172024en
Primary Topic
HIV/AIDS Research and Interventions
Type
article
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article

Trajectories of adolescents living with vertical transmission-HIV virus

Maria Cecí­lia de Souza Minayo, Imara Moreira Freire
Ciência & Saúde Coletiva
HIV/AIDS Research and Interventions
article

Trajectories of adolescents living with vertical transmission-HIV virus

Maria Cecí­lia de Souza Minayo, Imara Moreira Freire
article en

Abstract

Abstract This study analyzes the life stories of eight young people living with vertically transmitted HIV in order to understand their perceptions marked by secrecy and silence regarding their experiences with the virus. Conducted at a specialized outpatient clinic in Rio de Janeiro, the study adopted circle dance, a Complementary and Integrative Health Practice, as a care tool. Using a qualitative approach and Life History as a data collection method, the focus was to understand the youth’s experiences related to the disease and the crucial aspects of their lives. Three girls and five boys participated in the study, all aware of their diagnosis. The principal emerging themes included family dynamics, school environment connection, challenges in treatment adherence, age at the time of diagnosis disclosure, and time elapsed since then. Analyzing these young people’s narratives allowed us to explore individual and social aspects of their experiences, revealing their similarities and differences. The circle dance workshops provided a playful space for expressing emotions and feelings through body movements, expanding young people’s perspectives on the future.

Ciência & Saúde ColetivaVol. 29(8)
Fundação Instituto de Pesca do Estado do Rio de Janeiro (BR), Fundação Oswaldo Cruz (BR)
Good health and well-being
Openalex Percentile: Top 84%
HIV/AIDS Research and Interventions
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Trajectories of adolescents living with vertical transmission-HIV virus — Maria Cecí­lia de Souza Minayo, Imara Moreira Freire · Ciência & Saúde Coletiva (2024) | TGRS Research Map | TGRS