Perspectives of parents with lived experience of cytomegalovirus infection, on universal newborn screening for congenital cytomegalovirus (cCMV) in Canada: a patient-led qualitative study
Parental anxiety is not a deterrent for UNS for cCMV. Children with cCMV and their families deserve every opportunity to attain their best possible outcomes. UNS offers children with cCMV access to early intervention if they need it, and also helps to raise awareness and education to prevent future CMV infections.
Authors
- S Penny (ORCID: https://orcid.org/0009-0003-9435-3914)
- Maria Santana (ORCID: https://orcid.org/0000-0002-0202-5952)
- Marcia Bruce (ORCID: https://orcid.org/0000-0002-8864-4964)
- Eliana Castillo (ORCID: https://orcid.org/0000-0001-5548-8718)
- Barbara Tiedemann (ORCID: https://orcid.org/0009-0003-5927-7813)
- Iqmat Iyiola (ORCID: https://orcid.org/0000-0001-6738-4393)
- Ingrid Nielssen (ORCID: https://orcid.org/0000-0003-3402-1611)
- Rabea Chishti (ORCID: https://orcid.org/0009-0008-2420-8689)
- Laija Beaulieu (ORCID: https://orcid.org/0009-0006-6259-5179)
- Caroline Leroux (ORCID: https://orcid.org/0009-0000-7663-5529)
Institutions
- University of Calgary (CA)
- Alberta Children's Hospital (CA)
- Alberta Children's Hospital Research Institute
Publication Details
- Journal
- BMJ Paediatrics Open
- Published
- 2024-08-01
- DOI
- https://doi.org/10.1136/bmjpo-2024-002851
- Citations
- 3
- Primary Topic
- Cytomegalovirus and herpesvirus research
- Type
- article
- Field-Weighted Citation Impact
- 1.16
Funders
- Alberta Health Services