Integration of patient and public involvement in a doctoral research study using the research cycle
This paper contributes to the limited knowledge base on embedding PPI into a doctoral research study and within the paediatric setting specifically working in partnership with bereaved parents and carers. Employing an adaptive approach to meet individual PPI needs, building a trusting and respectful partnership, creating shared ownership and investment in the research, are essential components to successful PPI.
Authors
- Michelle Myall (ORCID: https://orcid.org/0000-0001-8733-7412)
- Faith Gibson (ORCID: https://orcid.org/0000-0002-8125-4584)
- Helen Pearson (ORCID: https://orcid.org/0000-0001-7388-3981)
- Anne‐Sophie Darlington (ORCID: https://orcid.org/0000-0003-4387-7278)
- Catherine Kayum
- Nicholas Bird
- Leona Knox
- E. B. Potter
- Carol Bell
- Karl Cox
Institutions
- Royal Marsden NHS Foundation Trust (GB)
- Great Ormond Street Hospital for Children NHS Foundation Trust (GB)
- University of Surrey (GB)
- London Cancer (GB)
- University of Southampton (GB)
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2024-08-09
- DOI
- https://doi.org/10.1186/s40900-024-00620-z
- Citations
- 8
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 6.79
Funders
- Royal Marsden NHS Foundation Trust
- National Institute for Health and Care Research
- NIHR Great Ormond Street Hospital Biomedical Research Centre