The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings

The research team included four researchers with intellectual disabilities (A.C., D.J., L.J., and R.K.-B). Researchers with intellectual disability have been part of every step of the research process; from study design to data collection and analysis to dissemination of study findings.Intellectual disability service provider representatives (M.W., N.P., and S.S.) were part of the co-design group as well. Two of these representatives were also co-applicants in the overall project (N.P. and S.S.). The co-design group included people with intellectual disabilities, families, intellectual disability support staff and health and social care professionals. The study was supported by a Research Advisory Group comprising a variety of stakeholders, including people with intellectual disabilities families, intellectual disability researchers, representatives from intellectual disability organisations, and policymakers.

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Publication Details

Journal
Health Expectations
Published
2024-08-01
DOI
https://doi.org/10.1111/hex.14174
Citations
9
Primary Topic
Healthcare innovation and challenges
Type
article
Field-Weighted Citation Impact
18.86

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article

The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings

Irene Tuffrey‐Wijne, David Jeffrey, Jo Giles, Leon Jordan et al.
9 citations
Health Expectations
Healthcare innovation and challenges
18.86
article

The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings

Irene Tuffrey‐Wijne, David Jeffrey, Jo Giles, Leon Jordan, S. L. Gibson, Rebecca Anderson, Nicola Payne, Amanda Cresswell, Andrea Bruun, Richard Keagan‐Bull, Meg Wilding, Sarah Swindells
article en
9 citations

Abstract

The research team included four researchers with intellectual disabilities (A.C., D.J., L.J., and R.K.-B). Researchers with intellectual disability have been part of every step of the research process; from study design to data collection and analysis to dissemination of study findings.Intellectual disability service provider representatives (M.W., N.P., and S.S.) were part of the co-design group as well. Two of these representatives were also co-applicants in the overall project (N.P. and S.S.). The co-design group included people with intellectual disabilities, families, intellectual disability support staff and health and social care professionals. The study was supported by a Research Advisory Group comprising a variety of stakeholders, including people with intellectual disabilities families, intellectual disability researchers, representatives from intellectual disability organisations, and policymakers.

Health ExpectationsVol. 27(4)
Kingston University London (GB)
Royal College of General Practitioners, National Institute for Health and Care Research, Research for Patient Benefit Programme
Quality Education
Openalex Percentile: Top 1%
Healthcare innovation and challenges
18.86
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The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings — Irene Tuffrey‐Wijne, David Jeffrey, et al. · Health Expectations (2024) | TGRS Research Map | TGRS