The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings
The research team included four researchers with intellectual disabilities (A.C., D.J., L.J., and R.K.-B). Researchers with intellectual disability have been part of every step of the research process; from study design to data collection and analysis to dissemination of study findings.Intellectual disability service provider representatives (M.W., N.P., and S.S.) were part of the co-design group as well. Two of these representatives were also co-applicants in the overall project (N.P. and S.S.). The co-design group included people with intellectual disabilities, families, intellectual disability support staff and health and social care professionals. The study was supported by a Research Advisory Group comprising a variety of stakeholders, including people with intellectual disabilities families, intellectual disability researchers, representatives from intellectual disability organisations, and policymakers.
Authors
- Irene Tuffrey‐Wijne (ORCID: https://orcid.org/0000-0002-7288-9529)
- David Jeffrey
- Jo Giles (ORCID: https://orcid.org/0009-0005-9472-7001)
- Leon Jordan
- S. L. Gibson (ORCID: https://orcid.org/0000-0002-9569-1865)
- Rebecca Anderson (ORCID: https://orcid.org/0000-0002-7095-8914)
- Nicola Payne (ORCID: https://orcid.org/0000-0001-5885-9801)
- Amanda Cresswell
- Andrea Bruun (ORCID: https://orcid.org/0000-0001-9620-0290)
- Richard Keagan‐Bull (ORCID: https://orcid.org/0009-0006-0278-8112)
- Meg Wilding
- Sarah Swindells
Institutions
- Kingston University London (GB)
Publication Details
- Journal
- Health Expectations
- Published
- 2024-08-01
- DOI
- https://doi.org/10.1111/hex.14174
- Citations
- 9
- Primary Topic
- Healthcare innovation and challenges
- Type
- article
- Field-Weighted Citation Impact
- 18.86
Funders
- Royal College of General Practitioners
- National Institute for Health and Care Research
- Research for Patient Benefit Programme