Utilizing a patient advocacy-led clinical network to engage diverse, community-based sites in implementation-effectiveness research
Our results suggest that this model of field site recruitment leveraging an existing partnership between an academic research team and an informal clinical network maintained by a disease-specific patient advocacy organization can result in engagement of diverse, community-based field sites. Additionally, reported barriers to participation by sites indicate that solutions centered around providing additional resources to enable greater capacity for site staff may increase community-practice participation in research.
Authors
- Elizabeth Schofield (ORCID: https://orcid.org/0000-0002-4745-3707)
- A. Ciupek (ORCID: https://orcid.org/0000-0003-4203-3946)
- Jamie S. Ostroff (ORCID: https://orcid.org/0000-0003-2671-5680)
- Donna Shelley (ORCID: https://orcid.org/0000-0003-1677-2577)
- Lou-Anne Chichester (ORCID: https://orcid.org/0000-0002-9044-0864)
- Rashmi Acharya (ORCID: https://orcid.org/0000-0002-4646-7461)
- Jennifer C. King (ORCID: https://orcid.org/0000-0002-4394-4103)
- A. Criswell
Institutions
- Memorial Sloan Kettering Cancer Center (US)
- Go2 for Lung Cancer (US)
- New York University (US)
Publication Details
- Journal
- BMC Health Services Research
- Published
- 2024-08-05
- DOI
- https://doi.org/10.1186/s12913-024-11376-3
- Citations
- 1
- Primary Topic
- Health Systems, Economic Evaluations, Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 1.13